Friday, October 18, 2019

After thoughts…


You know years ago, if you had told me that mama’s death would have been as difficult to deal with as it has turned out to be, I wouldn’t have believed it possible.  Partly because our relationship was difficult and I know how miserable she was.  I guess for some strange and stupid reason I thought that would make it a little easier.  It has not.  In fact, I think it has made it tougher because I got to experience mama on a level that I had never experienced before.  I think because I had more time with dad and our relationship wasn’t as strained throughout our lives as it was off and on with mama, it made dealing with his death a little easier.  I had over a year with dad while he was coherent enough to talk about things and just be together.  With mom we had 2, 2 day weekends and then a month with her. 

Mama must have told my roommate I love you every time she passed by her bed.  She knew my roommate was shy at the best of times and she was determined to get her to talk and get a smile out of her.  Well, mama did it!  She got my roommate to engage with her.  They talked about different things including my beloved Bulldog Gus and that got me to remembering the last time I brought him to see mama in February.  A year prior to that I had called mama balling while I was at the vet with Gus.  He had a grapefruit sized hematoma with a walnut sized tumor inside of it attached to his spleen.  He was so sick and I was faced with a decision that was a no brainer for me but the risk involved with that type of surgery at his age was so high that the vets weren’t sure if he would make it through the surgery.  It didn’t matter, I had to try and save my buddy no matter what it cost.
 
Mama was so upset because she loved that beautiful soul as much as I did and offered to pay for the surgery.  I told her that if it was more than what I had, I’d let her know but ended up having just enough to take care of the bill.  That surgery saved his life and gave me a year and one more month with him that I will cherish for the rest of my life.  So in February when we went to see mom, I knew his time was running short.  Gus was almost 13 years old and he had lived longer than the average with his breed.  Mama said that she could see that he wasn’t the same dog she had remembered but while in the kitchen she was giving him a treat, he got enthusiastic about it and lunged at it a little too much catching her fingertips.  I saw mama pull back and count her fingers like she was making sure they were all there.  She was smiling and told Gus, there you are, that’s the happy little guy I remember, but I’d like to keep my fingers if you don’t mind.  It made me laugh and it’s something I keep thinking about. 

It was about a month or so later on 03/19/19 that Gus and I had to take that final ride to the vet.  It broke my heart… it still does.  He was my first dog and helped me so much after Trey’s death.  He was my buddy that rode with me everywhere in the years afterward until I started working full time outside the house again.  Gus gave mama and me something neutral to talk about as did the other animals I’ve take in, fostered and helped.  The personalities and attitudes of each animal here were so pronounced that when I would share the stories of some of the activities with her she would laugh and always ask about them when we talked.  But mama told me that when I had to take Gus for that final ride, not to tell her about it until it was over.  She just couldn’t bare it.  So I waited until after it was over to call her.

Since these chapters are about love and loss, I have to share that event to help me deal with it too.  Gus maintained for that year after his surgery to remove the tumor.  He was older and slower but he was still Gus to me.  On a Friday afternoon he started to have a hard time standing and there had been a small bump on his back bone less than a quarter in size.  Over the next few days the bump grew in size, was soft to touch but was most probably painful too.  He still ate his food but I had to bring it to him.  The vets were closed of course due to the weekend but by Monday, I knew that I had to take him in.  So I called them and made the appointment for Tuesday afternoon and we spent the rest of that day and the next giving him all kinds of treats he normally couldn’t have. 

He had lots of belly and head rubs and love from others who had stopped by to say goodbye.  Gus had made such an impact on so many people’s lives.  He was and is well loved.  My roommate and I left for the vet that afternoon and we parked in the rear.  I moved Gus from the back seat to the back of my SUV in his bed and we just sat there for about 2 hours quietly watching the world.  He never got up and I rarely let go of his paw.  It was a beautiful day to send him off but it was also a very hard one to bear.  It became time and then Gus was free again.  My home and my heart were so empty and I had to adjust to that feeling of loss.  Gus had been on a schedule of meds and other things that I no longer had to do.  I didn’t know what to do with all this time I suddenly had and it is the same with mama’s absence.  I don’t know what to do with myself.

One of mama fondest memories that she mentioned in the last month she was here was me telling her about how Gus and I were doing when he first came to live with me.  I had bought him a bed and that lasted all of a week or so before he eased his way onto the bed and then onto the pillow beside me.  When I didn’t want to get up in the morning to face another day without Trey, Gus would come and give me a snot shower in the face.  When I started to pull the pillow over my head, he would stick his nose under the pillow to make me get up.  Then finally he settled on just sitting on my bladder because he knew I’d have to get up to pee.  Gus was smart, dedicated, loyal and was the best friend anyone could have ever asked for.  I remember that mom called me shortly after Gus came and said she was coming by for something, I can’t remember what, but she really just came by to see Gus.  Who could blame her?

Mama asked me whether I would move later on down the road one afternoon.  I never really thought about it much after I sold my camper.  I had accepted that I would probably live here throughout my not so golden years.  It did make me stop and think but over the next few days it became clear that maybe this was the place I needed to be.  On a practical level, I know this house and what’s wrong, what’s been done and how to go about fixing what is needed.  Trey, Dad, Gus and now Mom all died while they lived here so I might as well complete this cycle and do the same.  My memories are so strong here and maybe I’ll be able to feel them around me more here than anywhere else.  I’m still waiting on that dream or for dad to knock three times to let me know they are okay… maybe one day?  

Each loss I have endured seems to compound the ones before by bringing back all the memories of each to be felt all over again.  I guess that’s one of things that many older people have to deal with as their family and friends go before them.  But losing mama on another beautiful day, who was the last of my immediate family, the woman who gave birth to me and the connection we had is something in another realm altogether.  It is so out of my depth and not even close to what I thought it would be like.  The woman I brought home was my mother but not the one I have known most of my life.  The difference was staggering and I’m still not entirely sure of what to make of it all.  Processing all that had happened in that short time will probably take years at best.  It’s why it feels so surreal, like did all that really happen? 

I’ve talked on the phone more in the last few weeks than I have all year and probably last year too.  I’ve spoken to a few extended family members and have gotten to know them a little better.  I’ve gotten text messages and ones on Facebook from many others and my limited ability to have normal conversations shows all too clearly.  For that I am sorry, it’s just I’m awkward in the best social interactions and in the worse, I am more at a loss.  I can guess many of them are too maybe for different reasons.  But it is deeply appreciated that they have reached out. 

On Monday 10/14/19, I picked up mama’s urn from the funeral home.  I have talked to both the cemetery and them about markers for the plot mama has at Sunset where Trey is buried and have found that between state and federal laws and the business of dying that to have mom and dad’s ashes interned is not only going to be much more expensive because of their rules, it’s also going to be a convoluted process to pay for it now and do it later.  I’m just not ready to inter their remains at this time.  So I made the decision to just have the markers on the plot and I will scatter the rest of dad’s ashes and moms whenever, wherever I feel like its best.  Some of dad’s are at Kure Beach where he used to love fishing.  I’m going to have to think hard about where mom would like to be. 

When I picked up mom’s urn, I brought her home in her car since she’d only driven it twice since she got it.  It’s a fancy urn that is black with gold designs on it because it reminded me of the jewelry she wore.  I hope she likes it, but know she probably doesn’t care about those matters now any more than before.  One of the things I kept repeating to her while she was here and struggling was, I got you mama and that’s what I said to her as I put her urn into her car for that final ride home.  To look at an urn in whatever form or however beautiful it is, is humbling because you know, I know that the contents held someone that was here and was loved, even when the frustrations were high at times.  Ashes to ashes, dust to dust.  That’s what it comes down to in the end for our bodies.

No matter your views on the afterlife, while we are here it still counts in the way we all live our lives.  Who we are, our character, morals, values, the love we feel and show, the hard times we cause and get through, the pain we endure and the things we have accomplished is all a part of us.  It’s these things we take with us when we go while leaving the body behind.  But it is also things that are left behind in the hearts and souls of the people who love us.  The memories and feelings are what’s important even if we struggle with them.  Mama was important.  I don’t think she realized just how important she really was.  I’ve known all along that she was important and that’s why I’ve had the issues I’ve had with her.  Mama mattered to me and I feel the loss of her deeply.  I feel the loss of Trey deeply. I feel the loss of Dad deeply.  I feel the loss of Gus deeply. I feel the loss of Danny deeply.  All of these losses have left me a much different person.  They all mattered and they have all touched my soul in different ways so when they left this world there is a bigger void in my heart. 

All of these events over the last year bring me back to my original questions that I’d started to search for answers after Trey died.  What is my purpose here?  I now understand that much of that purpose is to learn and maybe clear some karmatic debt possibly accumulated along the way.  But there must be another reason I am left here when so many I love have gone before me.  What is it that I’ve got to do before I die that would fulfill that purpose?  I still don’t know if or when I’ll find the answer to that question and am sure that many others grapple with it as well. 

After bringing mama home, I’ve spent the week looking at pictures and trying to find some to post.  I had to dig around in a few different places and found that there are even less pictures of dad than of mom because he too was usually behind the camera.  I can’t tell you what it meant to me to find some pictures where mama was actually smiling.  She did have some happy moments in her life, although not near enough.  It seems like we only took pictures at holiday’s and rarely in between for those everyday moments.  But I think back and know we were living those moments whatever they were.  Mama and I did have a lot of good moments too.  We both have a dark and twisted sense of humor.  We both loved Trey and Gus with all of our hearts.  We both share a lot of memories of the past whether they are good or bad.  We both loved each other even when we couldn’t show it.  In the end though it was quite clear that the love was given and received by each and that’s all that matters.  




Sunday, October 13, 2019

Mom's Life in Pictures

Ya'll know mama hated to have her picture taken but I've combed through all the ones I have and picked out some that are important to me.  I try to go through the years with her but there are a lot of blanks...




Mom and Grandma Louise.


Mama


Mama


Mama and Granddad Bill.


Young Mama


Mama 9 years.


Young adult mama.


Mama's Prom.


Young Adult Mama (on left).


Mom and Dad's Wedding.


Mom camping? Who knew?


Mom and Princess.


Mom, Princess and Tom Cat.


Mom and Uncle John.


Mom and me.


Mom, Dad and me.


Mom and not me... too skinny and dark hair.


Mom and me.



Mom and me.


Mom and Aunt Mary (Dad's side).


Mom and Dad.


Mom's usual expression when a camera is aimed at her.


One of mom's WTF looks.


Mom, Dad and me.


Another of mom's favorite expressions.


Mom and Trey.


Mom, Trey and me.


Mom, Trey and me.


Mom and me.


The only family picture that I know of. On couch from left to right is Grandma, MawMaw, Dad and Mom.  On the floor from left to right is Trey, Billy, Will and me.


Mom.


Aunt Sue, me, Trey and Mom.


Mom 1996


Mom at my house again.



Mom 1998


Mama at my house.


Mama at my house again with Trey taking the picture.


Trey, Grandma and Mama.


Barbara Ann Bruner Forbis
Also known as Mama, Mom, MeMaw, Wife, Sister, Daughter, Cousin, Aunt and Friend.
08/17/1945 - 10/09/2019
You are missed, you are loved and you are so much more...



After Thoughts...

Mama’s Gone…


Sunday 10/6 I met with my longtime friends and neighbors at a notary’s home and completed all my documents.  On Monday the woman who helped me with getting the house cleaned was here for over 6 hours and mama’s nurse came that afternoon.  She said that mama’s time is running down.  I knew that, saw it and could feel it in my bones.  So that’s why I already had my talk with mom on Sunday morning.  She had been sleeping so much, eating so very little and moving around even less that I knew it was time.  I told her while I thought she was sleeping that I was so very sorry that her life was so painful on so many levels.  Earlier in the month when she was more coherent we had spoken of reincarnation and she hadn’t dismissed the idea so I told her that if it was a real possibility that I wanted her to do her best to find a way to heal her soul for all of our sakes.

I told her about reading how trauma is inherited from the generations that come before us and if we can come to this world to learn the lessons we need to learn and try to heal the wounds that we carry from others and ourselves, that maybe, just maybe if and when we do decide to reincarnate we would all have a chance at a better life.  That’s what I wanted for her more than anything in the world at that moment.  I better life.  I told her that even though we had had a difficult relationship most of our lives that she would always be my crazy ass old mama and she gave me a quick grin that let me know she heard me. 

Encouraged by that I went on to tell her that while I am not even remotely ready to let her go, that if she needed to go I understood and would be all right… eventually… but I asked her to come visit me in my dreams so I would know that she was all right.  I told her that when she does cross over to tell that little rascal to do the same because I was missing him so very much and was a little pissed that he hadn’t come to me in my dreams except for once.  It was a weird one where Trey and I were riding a roller coaster in a wheat field.  It was just the two of us, he didn’t ride roller coasters in real life and I hadn’t eaten wheat in a very long time so I don’t know what that symbolized. Mom gave me another quick grin while never opening her eyes.  I thanked her for coming home and giving us this time together however brief.  I told her it meant the world to me and she did too.  I guess I never realized how much until just that moment.  I brought Peaches out to her for what would be the last time while she was here and let her know that I will love that cat and take care of her until the end.  All the dogs were sitting in the chair across from her bed and the beds next to the chair shortly after I put Peaches back in to the bedroom.  I think they knew it was time too.

On Tuesday I went to my doctor’s appointment, stopped by the funeral home to transfer mom arrangements and filed my paperwork at the courthouse.  In my head I kept asking mom to hold on just a little longer so I could finish this stuff to be by her side.  Well she did but just barely.  Tuesday night turned into Wednesday morning 10/9/19 and my roommate checked on mom about 1 in the morning after I had gone to bed.  When I got up at 7 am… mama was gone.  The feelings I had been holding back came rushing out as the tears started and I couldn’t stop them.  I sat there holding her hand and laid my head on her chest and let it go.  Mama was gone and even with my friends and family still in this world I felt so very alone at this time.  I felt like a failure and wondered if I did anything to hasten her departure.  I felt rushed and lost and tired and such sorrow that I couldn’t move for a while.  I felt regret and guilt and such love for this woman who is and always will be my mama.

After a while, I woke my roommate up and told her mama’s gone.  After she got up I told her I needed to wait for a bit before I call hospice in because then things would start moving quickly and I wasn’t ready for that yet.  I really meant I wasn’t ready for any of this at all.  I kept wondering around trying to figure out what to do and would just end up sitting on her bed again.  I got Peaches again and brought her to mom so she could smell that mama was gone and not feel like she just disappeared on her.  But eventually I made that call and also called my cousin.  She came to the house directly and helped me so much by calling the family and letting them know.  When the nurse came she was surprised at how quickly she had to come back as we were… sort of.  The nurse pronounced mama’s death at that time and I asked her if we could clean mama and change her clothes.  I just couldn’t let them take mama in her housecoat and wanted her to have the dignity of being clean and clothed when they came to pick her up.  It was one of the last things I would be able to do for her.

The nurse asked to see a picture of mom and both my cousin and I told her that mom hated to have her picture taken so there were so very few, but I found one that was fairly recent and we showed it to her.  I pulled mom’s ruby cross and necklace off of her and gave it to my cousin because mom had given me a sapphire one many years ago.  I wanted her to have this one as a reminder of how much she meant to me and mom.  All too quickly it became time for mom to leave for the last time when the funeral home people arrived.  My cousin stopped them for a minute and asked if she could take a picture of mom and me holding hands. They were gracious to give us the time.  During the whole time I kept telling myself that this is really happening. 

As with dad, I could only prepare myself so much as to eventuality of losing a parent.  The speed at which this all happened was mind blowing and makes the entire month mama was here seem surreal at best.  I kept hearing mama tell me she should have come home sooner and I wish she had.  I wish there wasn’t so much that had to be done in that short time.  I wish I understood how much her health had gone down in the last six months but I didn’t go to see her as much as I should’ve.  I wished Linda, who knew mama’s health better than anyone else at the time would have called sooner and been a better friend to her.  But no matter what I wished for, things had to happen just the way they did.  I keep thinking about why mama said she didn’t want to bother me at this time in our lives and I think she felt how resistant I was of taking on the responsibilities of caring for her at the end.  That’s all on me.  I have stated several times that mom was stubborn, difficult and demanding at times with me and others but I had learned to deal with her in a way that allowed me to still be able to live my life and find some sort of peace.

Like many people, I will always have regrets about things in the past but I’ve done my best to learn from my mistakes and try to make better choices for the present and the future.  While I regret that mama and I had such a short period of time together I will always be thankful for the month we did have, for the words that we both needed to hear and for the chance to make her last days as comfortable as possible.  She may have been confused and afraid of the process of dying but she knew she was safe here with me.  She saw me handling everything that was happening while trying to take care of her too.  Maybe she found some faith in me after all.  Looking back on things now with more information than was available, I think mama like so many of us was looking for acceptance on a very basic level that she hadn’t been able to find throughout her life.  I understand that all the way to my core but I know with her relationship with her own mother who took her into her home at the age of 2, there was another level, even deeper than my own.  While I accepted mama for who and what she was, I doubt that it was the type of acceptance she was looking for or needed so very much and I’ll have to live with that for the rest of my life.

So as the funeral home people brought mama from the house into their hearse for her final ride, I watched with the thoughts that the most complicated piece of my heart was going with her.  No matter what had happened during our lifetime she was still and always will be my mama.  I also thought about how I started calling her mama when I was a child and then the evolution of calling her mom, then devolving back to calling her mama in the end.  But this time she was reverting back to being a small defenseless child herself and the rolls had reversed as I was taking care of her.  It’s thoughts like these that run through our minds at times like these are inconsequential but still a fleeting one.

My cousin and I hugged a lot while this was going on and after mama had left the nurse had to begin her final duties that day.  Sue was so very kind and considerate during the whole process unlike the nurse that came after dad had died.  Sue made things bearable and took care with both mama and me.  She handled everything from start to finish in a manner that honored mama’s life and death with a compassion that is rarely seen these days.  I had also called Andrea, mama’s aide who also took such good care of her and asked if she would come by one last time.  She did and she was the most compassionate person to help mama and me during this time.  Both of these outstanding people will be remembered with such fondness and gratefulness as time moves on.  The world could use more people like that.  I’ve said several times that peoples kindness touches me in a way that cruelty never could.  Kindness makes me cry quicker and deeper than almost anything else.

Later that day the funeral home people came back to get the signatures for their paperwork and the equipment people came to pick up all the stuff in the dining room.  For most of the day afterwards, I just sat in my driveway plucking weeds from it.  It was a mindless activity that I could do while I let myself feel and come to grips with mama’s death.  There were a few phone calls I still needed to make and take as I could.  I had told my cousin that I didn’t want any visits and understand that was hard on the rest of the family.  But I just couldn’t do it.  I needed time alone and to be quiet.  At some point I had a long conversation with one of my aunts and she revealed that my real grandfather was a stubborn, mean drunk.  My real grandmother was a salt of the earth woman who was so kind and caring.  We also talked about how the decision came about of mama’s second cousin taking mama in when she was 2.  I found out that she was close to my real grandmother and was asked that she care for her youngest child.  Its things like this that I never knew.  I had to call my aunt back and get the correct names for my real grandparents for mama’s death certificate to avoid issues down the road. 

Later still that evening, I decided that I was going to have a bottle of wine that was left over from New Years to celebrate mama’s life, which turned into two bottles.  I’m not a drinker and was rather toasted by the end of the night.  After I was well into the second bottle I got a few more phone calls and talked to a cousin on my dad’s side for quite a while.  I probably should apologize for the rambling drunk talk… I eventually went to bed only to wake up the next morning to face the loss of mama all over again.  While the equipment may have been removed all of her things were still right where we left them.  Mornings are the hardest time for me and it takes me until late afternoon to start to calm my mind down.  I walked around hugging her pillows, blankets and night gowns looking for comfort in those soft fabrics and taking in her scents while I still could.  I kept thinking that she remembered to tell me happy birthday the day before it was to be.  I still have an old message saved on my phone where she actually sang it to me and have listened to that and the other messages I have saved just to hear her voice.

Several people have mentioned that I should find some peace in the fact that Trey, mama and dad are all together again and I know in my heart they are right.  But at the moment I still feel left behind to deal with this world alone when I would give everything to be with them all.  While I accept that is not to be, it doesn’t change the fact that I’m tired, hurting and feel so alone even when I’m surrounded by people.  I haven’t had the best of luck when it comes to connecting with people as discussed before and it’s at times like these that I feel the absence of those connections more deeply.  Mama, dad, Trey and I were connected for better or worse and with those earthy connections broken, I feel untethered.  I can only hope upon hope that at least one of them if not all will visit me in my dreams so I can see and feel them again. 

The days went on in much the same fashion but I was cleaning up around here a little at a time.  When it became too much, I’d have to stop packing mama’s few possessions we brought away into my closet.  The dogs seem to be grieving too, especially Walter because he still lays on the floor in the dining room most of the time.  I have to entice him to eat his breakfast in the morning and that means the world to me too as stupid as it sounds.  This foster dog has only been here six months and he is grieving for my mama or for me or both.  Rocky is still a big puppy who likes to play most of the time, but has been much more subdued in the last week or so.  As with Gus who made me participate with life after losing Trey, both of these guys will do the same with mama.  I have no doubt. 

On Saturday, Tiffany came to the house and brought all the jewelry mama had given her to me.  She still had it in the bags mama had placed them in.  We talked for a while and cried a bit.  She had experienced the same short phone calls with mama over the same time period as I did, had the same almost nasty text messages from Linda but hers had started way earlier.  We talked about the old neighborhood and a few of the kids.  When she told me to call her anytime, I told her, that I had really meant what I said in the blog that I had wanted her to move on with her life.  I probably wouldn’t stay in contact for that very reason so it would be up to her if she wanted to talk she would have to call.  She said she understood and that we all had helped her so much through Trey’s and Danny’s death and still considered us family.  I told her I wanted her to be as happy as she could be in this life and I’ll be right here if she needs me.

I left the jewelry on the table for a long while because I couldn’t open it.  Later on I finally did and found mama’s class ring and dad’s wedding band that she thought was stolen.  It had been so long since I’d seen a lot of it but had recognized the pieces I had given her over the years.  Mama had loved her jewelry and I had a piece in my hands that I knew was one of her favorites.  I put the ring on and have kept looking at it since.  It’s a piece of her life that is tangible and helps remind me of the way she was when she was full of life, good and bad, happy and sad.  But I also feel so very deep sorrow that mama is gone… 

Mama's Life in Pictures 

Saturday, September 28, 2019

Peace, love and happiness… or not.


As I was proof reading the last post it became apparent that it was sounding like things where all peace, love and happiness but sometimes it’s anything but.  I do mean that things are worked out as well as they will ever be between mom and me but the reality of the situation is still difficult in the way of her physical limitations and definitely the emotional and mental conditions.

There is a learning curve with caring for any person at the end of their life and since the nurturing gene seems to have skipped several generations it is something I am trying to learn.  I’ll never be a natural but I can at least put forth the effort because mom seems to need it so very much now.  I think she has been looking for it all along in all the wrong places and because I’ve done the same thing, I can see where it comes from.  In the moments where it’s hardest for her to breathe she is more confused now than the new normal and it’s when I can be more nurturing and comforting to her.  That reality is a far, far distance from the woman I grew up with or even the one who was here 10 years ago.  It’s hard to wrap my brain around it.

Then there are the moments where the medications have kicked in and she is more like the woman I remember.  In those times mom is a little more demanding and discontented.  It’s softer now if that makes sense but it’s still there underneath.  While she is trying to make things easier on me now when she is able sometimes I feel like it’s so I can do more for her even when she is able to do for herself in that moment in time.  Some examples are like when I’ve finished getting her off the potty (her home sweet home now as we like to call it) or setting up her meds or making sure she has eating, she will wait until I sit down to ask me to do something else.  Repeatedly.  Just little things like more tissue, Q Tips, wipes or simply just to move something to another location.  It’s during these times it is harder for me to be nurturing to her.  Oh, I usually do it but it does get on my nerves more when I am tired and sleepy.  Such is life, I guess.

I also talked with one of the first hospice nurses and she told me it was natural for mom to want to have some control over the simple daily things and it was important to ask her things like did she want yellow or green socks to help give her a sense of control.  Now, that I can do but the things I mentioned above go beyond that.  It was weird that the nurse even mentioned it because the conversation was about the time she may have left.  We all know it’s an impossible question but one I still felt compelled to ask.  Her answer was interesting though because she stated that a person’s personality makes a difference in the way that, if they are a fighter then they will usually fight to stay here longer but if they are the type to give up easily then that’s what they’ll do.  Mom fits both types with her stubbornness and decisions to give up on things in life… so that cleared that up!!!

It also seems like mom is unaware of the impact she has made on other people lives over the years while believing that she doesn’t bother anyone.  But I know for a fact that she has made an impact of other people’s lives as evidenced by the conversations I’ve had with them when they had a problem or issue with her.  While mom was overt with me as a kid, her methods turned more covert and subtle over the years which just became her natural state of being.  I talked about the control that she had held on to tightly for so many years had begun to loosen tremendously lately but it is still there just on a much smaller scale.

Since I began to read many books on the issues of psychology that have come a long way over the years, it’s something I’ve tried to be aware of in myself.  While I know that I am very different in some aspects from mom and the environments that I have lived in were different too, it’s always been my concern that I may have that same trait, issue or problem.  It probably was the biggest reason I lived my life the way I did, in an effort to try and go the opposite direction.  I guess it depends on who you ask as to whether I’ve been able to control that within myself.  As best as I can tell, the people who have been kind to me see me as the same way and the ones who ended up using me think I am the user especially when I don’t allow that to continue when I see it for what it is.  Maybe it's how people treat me that determines how I will treat them.

It’s now 09/25, almost 3 weeks since I’ve been off from work and the routine that helped me to get through the week has been altered drastically.  Slowly but surely we are establishing a new one that will let me go back to work around the middle of October… hopefully.  I miss the exercise and can’t believe that I am even writing that!!! I will probably hurt for a few days when I return because I am not doing much physically at home.  I also miss some of the people and others… not so much.  I took a moment to walk down to my friend’s house the other day, who is also having serious health problems and it felt good to be out of the house for a few minutes.  I’ve completed everything that can be done at this time and am just waiting on things to finish their cycle so I can complete closing down mom’s accounts. 

During this time it also became clear that I needed a new POA and will but trying to make the decisions of who could and would handle it was difficult because the few people I trust are older than me.  It also became clear that the person I selected at first wasn’t going to work out so back to the drawing board and then another redo of all those documents.  I’ve said several times in this blog, I don’t mind dying so much as a long, slow and painful death.  I’ve had a living will done for years that states my desire to not die in a bed depending on others for the most basic of functions and that still holds true today, if not more so after caring for mom.  I am not going to be a burden to anyone and let’s face it, when it gets to that point; there is no quality of life anymore.  It will simply be time to go on my terms. 

We also have a new problem that the Fed Ex driver, which is a female, is afraid of dogs, and with Rocky being an outside during the day kinda dog, she is now refusing to get out of the truck for moms packages.  I have tried to find a solution and she is not interested but states that she will stop delivering them if I can’t get Rocky under control.  Of all the deliveries we have coming here she is the only one who has an issue with him, that I know of.  I just have to state again, that if you have any job that takes you to people houses and you are afraid of dogs… then you are in the wrong job. Period.  Rocky can tell she doesn’t like him and that makes him not like her.  For those of you who don’t know, Rocky was abandoned by the neighbor’s and I took him in.  Inside he is the sweet, gentle giant, but outside he is hell on wheels when it comes to strangers and he will protect the yard. 

Mom asked me did I know this process with her was going to be as difficult as it was.  I said, oh yeah because even under normal circumstances things are difficult to complete on a good day.  When dealing with corporations, accounts, courts and the like… ain’t nothing quick or easy about it.  Then compound the issues detailed earlier with mom’s refusal to handle things and you have a pretty good idea of the magnitude of things and the time to get them handled.  Mom has told a few people that I have done a stand up job of getting things done.  But I haven’t dealt with our house and it still looks like a hurricane went through it.  Whew, it wears me out just thinking about it.  She seems pleased that I have saved her some money from rolling her phone account into mine to negotiating her security contract buy out for early termination.  When we go to the store, we all try to make our money go as far as possible and that isn’t going to change.

Some of our aunts have tried to call mom several times and they haven’t been able to reach her.  She has good moments and bad ones.  Hospice is still trying to get her medications leveled out and recently they took her off one of the anxiety drugs that she had been using off and on for many years and switched her to another one.  That one has made her sleep A LOT over the last 4 days and when a nurse was here on Friday I asked is this normal?  They said that until the drug got into her system enough to stabilize her anxiety that causes her to shake uncontrollably, she would sleep more.  Hummm. Well it is hard to get mom awake to eat, use the bathroom and take her other medications but we are making it happen.  Our Aunts have been calling me now since mom is not answering her phone and it’s so very good to hear from them.

My cousin mentioned that I may need to hire someone to help me care for mom and that is a possibility.  One I know nothing about but I better get on it and start doing some research.  While I appreciate that my employer offers the FMLA, it has a lot of limitations and it only covers a certain 12 week period of time.  I don’t know who figured you can schedule a death like a doctor’s appointment but that’s the way it is.  I’ve got other responsibilities that need to be taken care of in my home so I have got to go back to work and try and balance everything else.  I guess I’ll be using the old trial and error method as I’ve done so many times before.

 10/02


It’s been a quiet few days because mom is sleeping more and more.  At first I thought it was the new anxiety medication the hospice nurses had switched her to but after one came yesterday, I’m not sure at all.  Mom’s bed sore isn’t healing, so we got her an air mattress that moves.  It feels like there are pool noodles that change positions every so often to relieve the pressure on her body but she has also developed a large blister on her heel.  I don’t know why because we have been keeping her turned on her side to help the sore on her back.  Mom’s feet swell a lot but now her hands and a few places on her face are swelling too.

I then decided to scale back the new anxiety medication to every 12 hours instead of 8 to see of that was the problem.  It helped some but now the nurse wants to up her methadone to a full tablet instead of a half and cut the morphine to every 4 hours.  So we are trying that and going back to the 8 hour schedule for the anxiety medication.  If the nurses can’t tell if mom’s decline in the last week is due to the changes in all the medications or whether it’s a natural progression of the end… then I sure as hell don’t know.
 
Mom gets fixated on small things and can’t seem to focus on anything else around her.  When she does get up to potty it takes an hour minimum to get that done but sometimes it takes as much as an hour and 45 minutes.  There is this process she has to go through and it is almost OCD at this point.  She is wearing depends now in case she can’t hold it and that in itself is another ball game altogether.  I’ve told mom every day that I am trying to get back to some semblance of a routine before trying to go back to work.  She isn’t really happy with that when she is lucid enough to understand.  At 9 pm, I try and motivate her to the potty in the hopes of going to bed at 10 pm.  Most nights she simply won’t start to go until 10 pm, so I have changed the clocks she looks at so they read an hour later than it actually is.  Maybe this will help?  When the time changes in about a month I’ll evaluate whether to change it or just let them show 2 hours ahead of the rest of the house.

I think mom understands she is dying but not the process of it and what it’s actually is doing with her body.  She is talking less and less now but using hand gestures that I’m having to decipher.  They don’t always make sense.  When she is awake I keep the TV on and we have been watching old episodes on Unsolved Mysteries.  It helps keep her mind from circling around those top 10 issues and a little with some of the OCD things.
 
Over the next week and a half I still have several things that need to be wrapped up.  Most of them are things I have put off like finishing my own paperwork, transferring mom’s final arrangements to a local funeral home because it’s easier, filing all the paperwork at the courthouse and cleaning the house.  If I can get this stuff done, it will be a load off my mind.  I think I will message Tiffany and see if she will come and sit with mom a few hours on the weekends after I return to work… if I can.  

Mama's Gone